I’m sitting here while my amazing resilient daughter works with her speech therapist.

- It’s pouring outside. 

-She started on an increase of her seizure meds so she is bound to be a bit sleepy. 

-Her wheelchair is broken so what normally tilts for pressure relief and comfort is fixed in one semi comfortable position.

-She’s trying to get used to a new nurse . (We’ve gone 14 years without one and are trying to settle in all the while not knowing how long she will stay, of course she’s a new grad. She has aspirations and home nursing is not the most exciting place to practice.) 

-And… They are working on re-organizing the words on a communication system. That’s been pretty frustrating for about a year.

This is not a completely crazy day. It’s kind of how things go. 

Regardless she’s happy trying, putting in her best effort to use her talker to communicate. She may even be showing off a bit for the Nurse. Of course she is.

This is another thing that amazes me about this life.

I so often can feel frustrated, tired, irritable, even defeated, but when I watch her just soldier on, so often with joy (her middle name).

I am encouraged and inspired by her resilience. She teaches me.